National Organization for Rare Disorders
Address
55 Kenosia Avenue
Danbury, CT 06810
(800) 999-6673
Description:
The National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
NORD provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Hours
Office: Mon-Fri 9:00AM-5:00PM; Call Center: Mon-Thu 9:00AM-7:00PM, Fri 9:00AM-6:00PM
Required Documents
Proof of diagnoses, Physician Referral, Proof of financial need
Eligibility
Must be a US resident, able to show financial need, and have applicable diagnosis or physician referral
Fees
No Fees
Intake Procedure
Call 800-999-6673 for Patient Services
Languages
Spanish
Service Area
Statewide
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
Description
NORDâs Rare Disease Database has reports in non-technical language on more than 1,200 rare diseases. NORDâs Organizational Database lists disease-specific patient advocacy organizations for rare diseases. The National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Hours
Office Mon-Fri 9:00AM-5:00PM; Call Center Mon-Thu 9:00AM-7:00PM; Fri 9:00AM-6:00PM
Required Documents
None
Eligibility
All
Fees
No Fees
Intake Procedure
Go online to search database for diseases and organizations
Service Area
Statewide
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
General Information
Hours:
Office: Mon-Fri 9:00AM-5:00PM
Call Center: Mon-Thu 9:00AM-7:00PM, Fri 9:00AM-6:00PM
Intake Process:
Call for financial assistance, Become a member and search the database online
Program Fees:
Varies
Languages:
Spanish
Eligibility:
Patients: Must have applicable diagnosis or Physician Referral.
Members: National Alliances, with Non-profit status, for Rare Diseases worldwide
Is Shelter?
No
Miscellaneous
AKA:
NORD
Related Resource
Date of Official Change:
April 4, 2019
Legal Status:
Non-Profit
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
NORD provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Hours
Office: Mon-Fri 9:00AM-5:00PM; Call Center: Mon-Thu 9:00AM-7:00PM, Fri 9:00AM-6:00PM
Required Documents
Proof of diagnoses, Physician Referral, Proof of financial need
Eligibility
Must be a US resident, able to show financial need, and have applicable diagnosis or physician referral
Fees
No Fees
Intake Procedure
Call 800-999-6673 for Patient Services
Languages
Spanish
Service Area
Statewide
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
Description
NORDâs Rare Disease Database has reports in non-technical language on more than 1,200 rare diseases. NORDâs Organizational Database lists disease-specific patient advocacy organizations for rare diseases. The National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Hours
Office Mon-Fri 9:00AM-5:00PM; Call Center Mon-Thu 9:00AM-7:00PM; Fri 9:00AM-6:00PM
Required Documents
None
Eligibility
All
Fees
No Fees
Intake Procedure
Go online to search database for diseases and organizations
Service Area
Statewide
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
Geographies Served
Serves All Areas
Address Listings
Mailing
55 Kenosia Avenue
Danbury, CT 06810
Physical (Primary)
55 Kenosia Avenue
Danbury, CT 06810
Contacts
Abbey Meyers
General Email
Phone Numbers
Main Phone
(800) 999-6673
Fax
(203) 263-9938
Headquarters
(203) 744-0100
Spanish
(844) 259-7178
TTY
(203) 797-9590
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