Matty Project in RI, The
Address
250 B Centerville Road
Warwick, RI 02886
(401) 921-4466
Description:
In 2017, The Matty Fund for Epilepsy merged with Epilepsy Foundation of New England to form The Matty Project in Rhode Island.
A resource center for children, families and caregivers struggling with Epilepsy on a daily basis. To provide funding for Epilepsy research, education, awareness and scholarships for children with Epilepsy.
The resource center awards scholarships to high school seniors, a week long camp, research, lecture series, hospital presentations and special events for epilepsy. Offers support and outreach to families affected by epilepsy throughout Rhode Island. Provides Information, advocacy, and education in a variety of ways, including:
- Parent Coordinator: an informed understanding advocate who is available to offer support, answer questions, and help families connect with other families living with epilepsy.
- Family Support Group: a monthly, Discovering M.E. (My Epilepsy), designed to give children who have seizures, along with their parents and sibling, a supportive and fun setting to for helping each other understand the many life changes associated with epilepsy.
- Educational Coordinator: promotes epilepsy awareness and education, including school programs and specialized workshops for school nurses and teachers which focus on identifying seizure activity, understanding how seizures affect learning, and teaching safety protocol to follow when a child has a seizure at school.
- Camp Matty: a week long therapeutic horseback riding summer day camp for children with epilepsy.
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
A resource center for children, families and caregivers struggling with Epilepsy on a daily basis. To provide funding for Epilepsy research, education, awareness and scholarships for children with Epilepsy. The resource center awards scholarships to high school seniors, a week long camp, research, lecture series, hospital presentations and special events for epilepsy. Offers support and outreach to families affected by epilepsy throughout Rhode Island. Provides Information, advocacy, and education in a variety of ways, including: - Parent Coordinator: an informed understanding advocate who is available to offer support, answer questions, and help families connect with other families living with epilepsy. - Family Support Group: a monthly, Discovering M.E. (My Epilepsy), designed to give children who have seizures, along with their parents and sibling, a supportive and fun setting to for helping each other understand the many life changes associated with epilepsy. - Educational Coordinator: promotes epilepsy awareness and education, including school programs and specialized workshops for school nurses and teachers which focus on identifying seizure activity, understanding how seizures affect learning, and teaching safety protocol to follow when a child has a seizure at school. - Camp Matty: a week long therapeutic horseback riding summer day camp for children with epilepsy.
Hours
Mon - Fri 8:30AM - 4:30PM
Eligibility
Children and families dealing with epilepsy
Languages
Spanish
Service Area
Rhode Island
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
General Information
Hours:
General Office Hours: Mon - Fri 8:30AM - 4:30PM
Is Shelter?
No
Miscellaneous
AKA:
Formerly Matty Fund for Epilepsy; Formerly Epilepsy Foundation New England
Related Resource
Date of Official Change:
February 25, 2022
Legal Status:
Non-Profit
Year Incorporated:
2003
Services
Click here to show all service details. Or click on a service name to see its details specifically.
Description
A resource center for children, families and caregivers struggling with Epilepsy on a daily basis. To provide funding for Epilepsy research, education, awareness and scholarships for children with Epilepsy. The resource center awards scholarships to high school seniors, a week long camp, research, lecture series, hospital presentations and special events for epilepsy. Offers support and outreach to families affected by epilepsy throughout Rhode Island. Provides Information, advocacy, and education in a variety of ways, including: - Parent Coordinator: an informed understanding advocate who is available to offer support, answer questions, and help families connect with other families living with epilepsy. - Family Support Group: a monthly, Discovering M.E. (My Epilepsy), designed to give children who have seizures, along with their parents and sibling, a supportive and fun setting to for helping each other understand the many life changes associated with epilepsy. - Educational Coordinator: promotes epilepsy awareness and education, including school programs and specialized workshops for school nurses and teachers which focus on identifying seizure activity, understanding how seizures affect learning, and teaching safety protocol to follow when a child has a seizure at school. - Camp Matty: a week long therapeutic horseback riding summer day camp for children with epilepsy.
Hours
Mon - Fri 8:30AM - 4:30PM
Eligibility
Children and families dealing with epilepsy
Languages
Spanish
Service Area
Rhode Island
Geography Served
- Rhode Island
If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.
Telephone Numbers
Address Listings
Mailing
250 B Centerville Road
Warwick, RI 02886
Physical (Primary)
250 B Centerville Road
Warwick, RI 02886
Contacts
Marisol Garcia
Christina Vilardi
Richard Siravo
Founder
Phone Numbers
Main Phone
(401) 921-4466
Fax
(401) 921-3366
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