National Organization for Rare Disorders

Address

55 Kenosia Avenue
Danbury, CT 06810

(800) 999-6673

http://www.rarediseases.org

Description:

The National Organization for Rare Disorders is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

General Information

Hours:

Office: Mon-Fri 9:00AM-5:00PM
Call Center: Mon-Thu 9:00AM-7:00PM, Fri 9:00AM-6:00PM

Intake Process:

Call for financial assistance, Become a member and search the database online

Program Fees:

Varies

Eligibility:

Patients: Must have applicable diagnosis or Physician Referral.
Members: National Alliances, with Non-profit status, for Rare Diseases worldwide.

Is Shelter?

No

Related Resources

Miscellaneous

AKA:

NORD

Related Resource

Date of Official Change:

April 4, 2019

Legal Status:

Non-Profit

Related Resources

Geographies Served

  • Serves All Areas

Address Listings

Mailing

55 Kenosia Avenue
Danbury, CT 06810

Physical (Primary)

55 Kenosia Avenue
Danbury, CT 06810

Contacts

Abbey Meyers

Primary Contact

President

orphan@raredisorders.org

Phone Numbers

Main Phone

(800) 999-6673

Fax

(203) 263-9938

Headquarters

(203) 744-0100

Spanish

(844) 259-7178

TTY

(203) 797-9590

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