Muscular Dystrophy Association National Office

Description:

MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and innovations in care.

As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since its inception to accelerate the discovery of therapies and cures. Research MDA has supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA!€™s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development.

MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation!€™s top medical institutions. MDA's Resource Center serves the community with one-on-one specialized support, and offers educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families.

General Information

Hours:

Mon-Fri 9:00AM-5:00PM; Resource Center Mon-Fri 8:00AM-5:30PM

Intake Process:

Register with MDA by calling the resource center. Register for summer camp online only after you are a member by visiting the website.

Program Fees:

No fees

Eligibility:

People with Muscular Dystrophy, ALS, and related neuromuscular diseases; their families and caregivers; and professionals in the field.
Summer Camp for ages 8-17

Is Shelter?

No

Related Resources

Miscellaneous

Related Resource

Date of Official Change:

February 22, 2019

Volunteer Opportunities:

Help out at MDA events, summer camp, in the office, or become a community outreach leader. Visit the MDA website to request more information.

Legal Status:

Non-Profit

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